CHAPTER 3 Gráinne Fadden Meriden Family Programme, Birmingham and Solihull Mental Health NHS Foundation Trust, Birmingham, UK; University of Birmingham, Birmingham, UK The involvement of family, social networks and those who are important in the life of the person presenting with difficulties is core in early interventions. When intervening early, it is much more likely that the individual will be functioning at a level where they are still engaged with families and relatives. The extent of involvement will vary depending on where the person is on the continuum of lifespan development. Clearly, there is recognition that for children with difficulties, the family must be involved, and this also applies at the other end of the age spectrum where older people are often dependent on family for support and care. It makes sense from several perspectives to support people in using those resources that are naturally there in their lives, particularly where this results in the avoidance of dependency on expensive secondary and tertiary services. The evidence presented in this chapter confirms that people are willing to engage in family-based approaches, with a high rate of treatment retention when families are involved. The involvement of those who are significant in the person’s life fits with models of recovery, and clearly, if an individual is deprived of this support, they are missing a key resource that could aid their recovery. Fostering competencies that can be incorporated into everyday environments and activities in both the individual and those who are close to them makes it more likely that gains will be maintained. Family-centred approaches tend to have a number of core values such as a non-blaming attitude towards families, collaborative working relationships between family members and professionals, the empowerment of families by emphasising concepts of choice and control, an emphasis on strengths rather than deficits and a goal of enhancing functioning. Family interventions are usually individually tailored and phase-specific. Reviewing family involvement and family interventions can be complex as there are a variety of ways in which family approaches are delivered. These can include working with whole families, parents or other relatives on their own, the individual with difficulties and significant family members, subgroups of families, for example supporting siblings, working with several families together including the person experiencing problems as occurs in multifamily groups, or without the affected person as happens in carers’ support groups. This chapter will attempt to summarise what is currently good practice in relation to the role that families can play in early intervention. A range of disorders will be referred to, and early psychosis will be used to illustrate what can be achieved by offering tailored family interventions and what the main issues are. A broad definition of family referring not just to immediate or blood relatives, but to those who are important in the lives of the individual, for example extended, reconstituted or proxy families will be employed. The benefits of the early involvement of the family have been described across the lifespan from birth to later life, and in the context of a range of diverse disorders. In a review of services for children with special health care needs, Bruder [1] traces the development of the concept of family-centred care from the 1960s when it was first described through to the integral involvement of families in early intervention by family empowerment [2] into a philosophy of care and a set of principles to guide service delivery. The rationale for family intervention is clear: experiences in the family context are critical to the child’s development [3]; the caregiving family is constant in the child’s life; the caregiver has the most time and greatest opportunity to influence the child’s development and competence, even where professional input is available [4]. Parental attitudes and beliefs have a powerful influence on the child [1], and if their resources are utilised to the full, costs to communities and schools are decreased because children arrive at school ready to learn [5]. Dunst [6] outlined the features of family-centred early intervention programmes as practices that: regard families with dignity and respect; share information so that families can make informed decisions and choices about intervention options; use practices that are individualised, flexible and responsive; encourage collaboration and partnerships between professionals and families; provide the support needed by families to help them to care for their children and result in the best outcomes for all. Ingber and Dromi have added the attitude of treating parents as experts regarding their family’s needs [7], and Brotherson et al. highlight the importance of home visiting in meeting emotional needs [8]. Where progammes adopt these features, for example with families of children with hearing loss, engagement and satisfaction with services are better [9]. A study by Moeller [10] highlights the benefits of family-based early intervention. High levels of family involvement correlated with positive language outcomes, and conversely, limited family involvement was associated with significant child language delays at 5 years, especially when enrollment in intervention was late. Significantly better language scores were associated with early enrollment in intervention. In spite of the obvious benefits of this type of approach, there are difficulties translating these principles into everyday practice worldwide [5, 9, 11]. Moving across the developmental lifespan, the value of involving the family in terms of preventative work in reducing health-risk behaviours and promoting social adaption in early adolescence has been examined. Family-centred intervention has been used to attempt to reduce antisocial behaviour and substance use with successful outcomes: young people in families who engaged in the intervention based on contact between professionals, school and families, and using principles of motivational interviewing exhibited lower rates of antisocial behaviour and substance misuse compared with matched controls [12]. In a review of family-based treatments for serious antisocial behaviour including conduct disorders, delinquency, substance abuse and criminal behaviour in adolescents, Henggeler and Sheidow [13] describe the benefits of a range of family models including multisystemic therapy, functional family therapy, multidimensional treatment, foster care and brief strategic family therapy. They note that these therapies are characterised by being flexible, strengths focussed, pragmatic and individualised. Particular issues they highlight include the need for more evaluation of these approaches with different cultural groups, and also issues linked with implementation, with many of these programmes being provided through purveyor organisations rather than through traditional mental health systems. This raises issues for those areas that cannot afford to import them, or have trained practitioners to deliver them. Other reviews in this area confirm that there is now clear evidence that family therapy is an efficacious treatment approach for adolescent substance misuse, although the authors once again highlight the need for further research in the area of ‘implementation science’, given the lack of widespread use of family-based approaches in routine clinical practice settings [14]. For an extensive review of family work for child and adolescent disorders, Kaslow et al. cover a wide range of disorders including mood, anxiety, attention-deficit disorder, hyperactivity, disruptive behaviour and developmental disorders including autism spectrum and eating disorders [15]. These are summarised in Table 3.1, indicating the extensive range of approaches to working with families that have been developed. The authors point out that the term ‘family interventions’ is a rubric, and that for most disorders, multiple family-based interventions appear to be of value. They highlight implementation issues linked with the resource-intensive nature of family programmes and draw attention to the way in which practitioners often use conceptualisations and techniques from multiple approaches, referred to as a ‘common factors’ approach rather than adhering to a single evidence-based approach with fidelity. Table 3.1 Summary of family-based interventions for child and adolescent disorders based on review by Kasow et al. (2012) [15] One of the areas where the role of the family seems to be central and the interplay between family involvement and early intervention is clear is in relation to the management of eating disorders, in particular, anorexia nervosa. A significant study carried out at the Maudsley Hospital in London comparing individual therapy with family therapy, and which followed people up for 5 years demonstrated that outcomes, in particular, weight gain, were better in those offered family therapy early in the course of the disorder [16]. Where there was a long duration of illness, both treatment modalities were associated with a poor outcome. Lock [17] highlighted the need for prevention and early intervention for those at risk of anorexia nervosa, given the evidence that symptoms develop long before the full syndrome becomes apparent. Highlighting further the benefits of family therapy, Lock noted that family therapy appeared to produce positive effects more quickly than individual therapy, prevent dropout and play a significant role in reducing the need for more expensive inpatient and residential treatments [18]. He also pointed out that treatments needed to be phase-specific. For example, for younger teenagers, the key issues may be early socialisation and identity, whereas for older adolescents issues related to dating, leaving home or making decisions about further education may be more pertinent. This is a theme that is referred to in much of the literature around the topics that are addressed in family work involving young people across a range of disorders. A series of further studies continues to confirm the positive benefits of working with the family when a young person has an eating disorder. It is clear that this type of approach is both effective and acceptable to both the young person with the problem and the family and can be delivered in different formats such as manualised family-based treatment [19]. In this study, participants reported a range of positive outcomes including increased closeness, communication, openness, honesty, problem-solving skills, parental understanding, awareness of feelings, family support, patience, cooperation, appreciation and overall happiness, with decreases in arguing and criticism. The mechanism whereby positive results are achieved has been shown to be linked with the development of a strong therapeutic alliance with parents [20].
Involving the Family in Early Interventions
Introduction
Family interventions across the lifespan
Childhood developmental disorders
Adolescent problems
Disorders
Randomised controlled trials
Considerations
Promising interventions: non RCTs
Depression
The addition of parenting elements seems to enhance most of the approaches
Bipolar disorder
Some studies show that benefits are mediated by parents beliefs about treatment
Anxiety disorders
Need trials with larger sample size and younger children
Attention-deficit hyperactivity disorder
More RCTs needed with broader age range
Oppositional defiant disorder
Parent programs need to be adapted for older youth
Autistic spectrum disorders
Problems because of complexity of study designs
Eating disorders
Research needed for family-based approaches for Bulimia Nervosa
Eating disorders