23 Madeleine Duncan1 and Claire Prowse1,2 1 Division of Occupational Therapy, Department of Health and Rehabilitation Sciences, Faculty of Health Sciences, University of Cape Town, Cape Town, South Africa 2 Occupational Therapy private practitioner, Cape Town, South Africa Clinically anxious people feel out of control, as if some disaster is about to erupt upon their lives, leaving them vulnerable and abandoned. Worries and bodily ailments preoccupy their feelings and thoughts, making it difficult for them to function effectively. Occupational therapists support people with anxiety and somatic disorders towards recovery by guiding and enabling their participation in daily occupations. Anxiety is a subjective feeling of heightened tension and diffuse uneasiness. It is an appropriate and adaptive human response and potential threat (Stein et al. 2010). Anxiety becomes a disorder when it causes subjective distress, impedes functioning and results in excessive physiological arousal as well as cognitive, emotional and behavioural symptoms. The difference between normal anxiety (worry that propels one to adapt and to act) and clinical anxiety (worry that causes distress and disrupts function) is not easy to discern. When anxiety markedly interferes with a person’s productivity and the fear is inappropriate to that person’s life experiences, it is called a disorder. Anxiety disorders are not limited to any gender, cultural or age group and are diagnosed in children as young as two to three years of age and in the elderly. The DSM-5 (American Psychiatric Association (APA) 2013) superseded the DSM-IV (APA 2000) as a universal authority for the diagnosis of psychiatric disorders. In most respects, DSM-5 is not greatly changed from DSM-IV. The appearance of a new version has significant practical importance because the DSM-5 will inform treatment recommendations and payment by health care providers based on diagnosis. The revised diagnostic specifiers for anxiety, somatic and stressor-related disorders are described in the DSM-5 (APA 2013) and will not be discussed in this chapter. A few significant changes in the DSM-5 to note are: Psychiatric signs and symptoms tell a particular story about a person’s internal turmoil, coping skills and residual capacities. A personal history and an occupational narrative provide clues about three possible factors contributing to clinical anxiety: With due recognition of the signs, symptoms and functional consequences of anxiety, somatic and stressor-related disorders, the occupational therapist is most concerned with addressing the person’s phenomenological story (lived experience of the health condition) and its impact on occupation, namely, what the person needs and wants to do every day in relation to his/her various social roles. Occupational therapists believe that the ability to ‘do’ in daily life and to find fulfilment in such ‘doing’ is the essence of well-being and lifelong development. Disabling anxiety, persistent somatic discomfort or unresolved or enduring stress affect the person’s functioning relating to his/her ability to perform the activities and tasks associated with various roles such as parent, worker, friend and citizen. Since mental ill health leads to the loss or disruption of occupation, the primary goal of occupational therapy is twofold: to help the person re-author a more hopeful, satisfying and occupationally engaged life story and to collaborate in the creation of occupationally enriched and health-promoting contexts. A range of formal and informal assessment methods are used to determine problem areas and assets and to identify priorities for change. Occupational therapy interactions with the anxious person are based on the principles of collaboration, empowerment and person-centred practice. The focus of assessment and intervention may be individual, group, community or the context/environment within which the anxious person is occupationally engaged. The methods used to uncover needs and assets follow: Using all five senses, the occupational therapist notices and interprets verbal and non-verbal behaviour in structured and unstructured settings. Scientific interpretation of observations requires sound knowledge of the signs and symptoms associated with different mental disorders (APA 2013). Purposefully structured activities such as cooking a meal, washing a car or playing a game provide the occupational therapist and the person being assessed with a point of reference for shared identification of functional challenges. Unstructured settings such as home, school and work environments are also used for observation and mutual identification of occupational performance difficulties. This method uses standardised tools that provide objective information about the type and extent of anxiety-related problems, in particular their impact on occupational performance. Measurement tools provide baseline information to prioritise recovery goals, plot progress and identify the outcomes of occupational therapy. Reference can be made to the following: This method uses semi-structured information gathering. A mental state examination is undertaken through the interview. Information gathering about occupation and functioning can occur using the topics covered in the tools listed earlier as informal interview guidelines. Needs and assets may also be uncovered through occupational storytelling which involves eliciting and creating stories about preferred occupational choices across the lifespan (Clark et al. 1996). Gathering and sharing collateral information from and with significant others (family, partner, employer, teacher) and team members (community health worker, social worker, nurse, psychologist) are done with this method. Mapping is a visual representation of the person’s social network. It also plots opportunities or sites in the community that offer access to occupations that, if pursued, may become personally meaningful and purposeful. Crane and Mooney (2005) provide an example of a community resource mapping toolkit which therapists may find useful when adopting a developmental and occupation-centred approach to practice. The occupational implications of anxiety, somatic and stressor-related disorders may be discerned by using different frameworks for analysis such as: Table 23.1 (follows this paragraph) combines elements of these frameworks into six domains for systematically identifying the occupational implications of a mental disorder. The domains operate bidirectionally. Individual strengths, vulnerabilities and illness narratives are unique and multifaceted. Each domain must therefore be interpreted with due consideration of the cultural diversity and indigenous health practices of the person, group or community. Table 23.1 The occupational implications of anxiety. The occupational therapy process (assess–plan–act–evaluate) is iteractive, moving through multiple cycles of problem identification and solution generation with a key focus on occupation and the occupational human in context. A plan of action is devised in collaboration with the person or group to achieve the following objectives: Figure 23.1 depicts an integrated occupational therapy cycle. The inner cycle positions the six domains described in Table 23.1, while the outer cycle reflects the objectives of the occupational therapy process listed earlier. Occupational therapists, working in therapeutic programmes in hospital or clinical settings, help individuals move beyond ‘symptom preoccupation’ to ‘symptom control and prevention’ by acquiring self-understanding and self-help skills. Recovery is supported by the appropriate use of medication if indicated. In addition, behaviours and patterns of living that feed into or result from the clinical disorder are addressed through therapeutic, remedial interventions. Prevention, promotion and psychosocial rehabilitation programmes aim to support the equalisation of opportunities, social inclusion and self-determination of people with mental health concerns. Occupational therapists working in social development programmes will shift their focus from ‘treating’ or ‘rehabilitating’ individuals to creating contexts that promote mental health and human development through occupation. The decision to assess or address the mental health, occupational or developmental needs inherent in any domain in Table 23.1 will be informed by: For example, using Figure 23.1, a curative, medical approach may be indicated for a person with obsessive–compulsive disorder who is admitted to an acute care facility. The aim of admission will be to reduce and contain the intensity of distress experienced by the individual (Table 23.1: Domain 2). Remedial, therapeutic action will be taken to address performance component impairments (Table 23.1: Domain 3) such as cognitive restructuring for obsessions and sensory modulation or medication for restlessness and therapeutic activities that redirect compulsions into productive activity (Table 23.1: Domain 4). Teamwork will inform the most appropriate case management to shift the person’s symptoms and functioning with due consideration of his/her personal circumstances (Table 23.1: Domains 1, 5 and 6). As the person’s acute distress subsides, attention may shift to addressing occupational engagement concerns and participation restrictions. Psychosocial rehabilitation strategies such as supported employment and reasonable accommodation in the workplace may be indicated and offered as part of an occupational therapy outreach or community-based service (Table 23.1: Domains 4 and 5). By linking the person with mental health support and empowerment groups, action is taken to prevent relapse, promote well-being through participation in valued occupations and advance social inclusion (Table 23.1: Domains 1, 5 and 6). Referring to Figure 23.1, the occupational therapist who works for a local authority or with a primary health care team may direct efforts, not only at individuals and groups but also at the mental health needs of populations. Preventive and promotive occupation-based programmes within a particular community or geographical area may address occupational risk factors (e.g. poverty and violence) that contribute to the development or exacerbation of mental disorders (Table 23.1: Domains 1 and 6). Preventative strategies such as support groups, income-generating projects or skills training workshops become useful forums for managing ‘revolving door’ clients (i.e. those who repeatedly enter and exit the health services). Psycho-education and development of competencies to perform and participate in occupation offer containment to persons who may otherwise seek medical and psychiatric support from an overtaxed health system. Skills training such as coping with anxiety and stress and raising awareness about the mental health impact of occupational deprivation, alienation and imbalance with education about the benefits of occupation for mental health and well-being may be conveyed. Mental health and quality of life are promoted and vulnerability curtailed through enriching and enabling the occupational repertoire of individuals, groups and communities. Community members who participate in occupation-based projects may develop psychological resilience through training as lay stress counsellors or conflict mediators. Young people may be coached in stress, conflict and anxiety management and other skills for living meaningful and productive lives. Job creation projects, all of which will be occupation based, may become the vehicle for mental health promotion, prevention of mental ill-being and the social inclusion of persons with psychosocial disability. Occupational therapists, working within the medical model in acute admission units, focus on remediating performance component impairments such as poor concentration, low self-esteem, free-floating anxiety and psychomotor agitation. Short-term treatment aims to address the performance component dysfunction associated with acute and subacute mental illness, for example, to increase attention span, judgement and emotional insight. Attention is paid to the selection and structured presentation of activities and techniques that afford therapeutic gains such as reducing panic attacks. The resurgence of occupation as the core focus of occupational therapy has challenged the profession to move beyond the bio-psycho-social model and its emphasis is on individual functioning. Attention is also being given to social models of practice that seek to change the contexts within which people become clinically anxious. These models recognise that individuals are part of a social system, group or community. Socially orientated occupational therapy situates the potential for personal transformation within sociocultural processes. The most appropriate plan of action is one that combines these two approaches. It recognises and taps into the benefits of both the medical and social models of disability (WHO 2001) at appropriate stages in the occupational therapy process whilst remaining grounded within occupational therapy practice models such as:
Occupational Therapy for Anxiety, Somatic and Stressor-related Disorders
Introduction
Anxiety: A clinical perspective
Anxiety: An occupational perspective
Uncovering needs and assets
Observation
Measurement
Interview and narrative
Consultation
Resource mapping
Discerning occupational implications
Domain 1
Domain 2
Domain 3
Domain 4
Domain 5
Domain 6
Occupational risks
Experiencing anxiety
Performance component impairments
Occupational performance limitations
Participation restrictions
Occupational consequences
Life events
‘I’m lethargic’
Cognitive
Self-maintenance
Microsystem
Occupational imbalance
Poor role modelling of adaptive occupational performance
Trauma leading to learnt helplessness or underdeveloped agency
‘I do everything in a rush because I am so jittery’
‘I’m always tired and nauseous’
‘The constant headaches get me down’
‘I’m losing it, feeling out of control, like I ‘m going crazy’
‘Something dreadful is going to happen; I expect disaster any moment’
‘My vision is blurred; things change size’
‘My heart beats very fast and I feel like fainting; sometimes I do’
‘A suffocating and choking feeling in my throat … like I can die’
‘It’s like ants crawling over my hands, like pins and needles’
‘Worry, worry, worry … that’s all I do; in fact it stops me doing anything else’
‘I go hysterical; I panic just thinking of…’ (phobia)
‘It’s like a movie in my mind; I experience flashes of it over and over’
‘I’m on edge, hyper-alert, irritable and ready to blow up’
‘I check and recheck, over and over; checking takes over my life’
‘My nose is so hideous; I can’t stop looking at it’
Poor concentration
Forgetfulness
Indecisive
Poor problem-solving
Distorted, irrational ideas
Obsessions
Self-critical thoughts
Excessive sweating causing body odour
Bitten nails
Chapped hands and skin from repetitive washing/eczema
Gum lesions from excessive teeth cleaning/grinding
Unkempt appearance from hair pulling
For example, implications of living in a crowded informal dwelling or in a children’s home
Restricted engagement in occupations that meet physical, social, mental or rest needs
Insufficient time for a range of fulfilling occupations, for example, worker role overload leads to burnout
Natural environment
Conative
Temporality
Mesosystem
Occupational deprivation
Exposure to pollutants that decrease resilience of body and mind
Excessive drive
Restless, jittery
Lethargy
Demotivation
Disorganised habit patterns and routines result in untidy or dirty living/working space
Poor time management, for example, compulsive cleaning, therefore neglects other tasks
For example, social anxiety reinforced by overprotectiveness of parent/partner
Family adjust their lifestyle around illness behaviour of person leading to resentment or co-dependency
Domestic abuse
Illness behaviour keeps person from using or enjoying life opportunities
Reduced occupational engagement leads to sensory deprivation or repetitive compulsions lead to sensory overload that in turn exacerbates anxiety symptoms
Temporal environment
Affective
Productivity
Exosystem
Occupational alienation
Income and structural poverty: lack of financial/practical means to do occupations of choice
Too few or too many opportunities/choices leading to occupational boredom or overload
Low self-esteem
Irritability
Mood swings
Aggression
Depression
Over-conscientious or avoidant: creates tension at work
Perfectionism leads to work overload and ‘burnout’
Work habits decline as worry or phobias increase
Unable to meet deadlines/commitment, for example, compulsions waste time
Patterns of avoidance leading to withdrawal from formal and informal social structures.
Refuses social invitations
Restricts lifestyle to cope with or focus on symptoms
Work support structures take strain
Illness behaviour estranges anxious person from the mainstream of society, disconnected from social networks
Sociocultural environment
Behavioural
Leisure/play/creativity and spirituality
Macrosystem
Cultural values and indigenous practices such as gender roles that regulate occupational choice, for example, stressors of an arranged marriage or adult circumcision
Social isolation due to decline of nuclear family and social networks, for example, being a refugee
Anti-occupations such as crime-related activities
Changing patterns of work, for example, migrant labour, unemployment or executive burnout
Substance abuse
Sleeping problems
Accident prone
Loss of libido
Altered eating patterns
Social withdrawal
Physical
High blood pressure and tachycardia
Migraine
Stomach ulcers
Dyspnoea or choking feeling
Frequency of urination
Skin rashes
Diarrhoea or irritable bowl
Reduced pleasure and self-efficacy in previously valued hobbies and interests
Boredom or frenetic participation with little restfulness and mindfulness
Inadequate reasonable accommodation policies in the workplace
Inadequate mental health support services
Civil unrest and high crime create enduring stress
Occupational therapy process
Determining priorities
Action: Grounded in theory