TEACCH: An Intervention Approach for Children and Adults with Autism Spectrum Disorders and their Families

 

CARS-ST

CARS-HF

1

Relating to people

Social–emotional understanding

2

Imitation

Emotional expression and regulation

3

Emotional response

Relating to people

4

Body use

Body use

5

Object use

Object use in play

6

Adaptation to change

Adaptation to change/restricted interests

7

Visual response

Visual response

8

Listening response

Listening response

9

Taste, smell and touch response

Taste, smell and touch response

10

Fear or nervousness

Fear or anxiety

11

Verbal communication

Verbal communication

12

Nonverbal communication

Nonverbal communication

13

Activity level

Thinking/cognitive integration skills

14

Consistency of intellectual response

Level and consistency of intellectual response

15

General impressions

General impressions



The CARS2-ST is appropriate for children under 6 or older individuals whose IQ score is less than 80 and/or those who do not have fluent language. It contains the same items as the original version of the CARS (Schopler et al. 1988). The CARS is a well researched screening tool which has been shown to be a reliable and valid measure for rating the behaviors related to autism (Lord and Corsello 2005; Magyar and Pandolfi 2007). In the CARS2 (Schopler et al. 2010), the reliability and validity were re-verified and t-scores added with an updated sample (N = 1,034). The CARS-ST has a sensitivity of .88 and a specificity of .86 in identifying individuals with autism as compared to individuals without autism. Ratings can be made based on direct observation during a clinic visit, during a school observation, or based on a parent interview (Schopler et al. 2010).

To complement the CARS2-ST, the CARS2-High Functioning (HF) version was developed at TEACCH to assess individuals older than 6 years with IQ scores 80 or above and fluent language. The items reflect current research on the diagnostic features of individuals with high functioning autism. The reliability and validity of the CARS2-HF is quite good with a sensitivity of .81 and specificity of .87 (Schopler et al. 2010). The CARS2-HF requires information from multiple sources including at least a direct observation and a caregiver interview in order to determine the pervasiveness of the difficulties over time and over settings.

To complete the diagnostic process, information about the individual’s current level of cognitive, academic, language, and adaptive functioning are also essential elements of the evaluation.



Assessment and Individualization


Assessment is part of the child or adult’s initial evaluation, and also continues beyond that point. The purpose of assessment is to identify the person’s strengths, weaknesses, interests, learning style, and emerging skills from a variety of perspectives. Our ultimate goal is to use the assessment information to develop appropriate individualized goals and intervention strategies and to continue to evaluate their effectiveness over time.

Utilizing information from parents, teachers, and the individual with ASD, individualized teaching goals are developed based on the perceived needs and weaknesses in different settings. Respect for the individual with ASD necessitates choosing goals and objectives based on recognition of the child or adult’s specific wants and interests. Emerging skills identified through the assessment process are used to form developmentally appropriate and achievable goals. Emerging skills are those skills that the child or adult is showing a beginning or partial understanding of but has not yet mastered the concept. For a young child, he/she may be starting to sort by color recognizing one or two colors but not consistently putting like colors together. For an adolescent learning to care for his/her own needs, he/she may be able to hold a broom correctly and make the sweeping motion, but does not yet have the concept of how to sweep an entire area. Part of the assessment process includes assessing the parent’s interests, needs, and skills as they are essential collaborators in this process. Carefully listening to parents is perhaps the most valuable assessment skill one can have (Morrell and Palmer 2006). Taking the time early on and throughout one’s relationship with a family to hear their story and to recognize their greatest concerns and needs creates a foundation that is essential to the ongoing collaboration.

A second aim of the assessment process is to identify the person’s learning style in order to individualize the teaching strategies and behavioral interventions. Knowing the person’s strengths—whether he/she is good at matching or decoding objects, pictures, letters, numbers or words—is the beginning step to Structured Teaching. The TEACCH approach has always been to utilize the strengths of the individual to help compensate for areas he/she is not yet ready to learn. Along with identifying strengths, defining the unique interests of the client is a very important aspect of the assessment process. Motivating individuals on the autism spectrum can be challenging especially if we make the erroneous assumption that what is meaningful to us is meaningful to them. Intense and atypical interests are defining features of autism spectrum disorders. As will be discussed shortly, Structured Teaching utilizes the clients’ special interests to increase their engagement, appropriate attention, and motivation to complete tasks.

Ongoing assessment is an important aspect of any intervention or educational program. Taking data on either the acquisition of a skill or the frequency of occurrence of a negative behavior helps us to determine whether or not the goal is being achieved. When targeting high frequency or high intensity negative behaviors one may actually have a successful behavior plan but subjectively not recognize progress without objective data that is regularly analyzed and charted. Data on teaching goals helps us determine when the intervention plan is working or not working and may provide information on how to refine the teaching method.


Formal developmental and functional assessment tools

The two most widely used formal assessment tools developed at TEACCH are the Psychoeducational Profile–3rd Edition (PEP-3; Schopler et al. 2005) and the TEACCH Transition Assessment Profile (TTAP; Mesibov et al. 2007).

The Psychoeducational Profile (PEP 1971) was originally developed at a time when children with autism were often thought to be “untestable” (Alpern 1967; Marcus and Baker 1986). Standardized tests often require an inflexible, language based administration that does not fully reflect the uneven profile of children with autism. A developmental measure, the Psychoeducational Profile (PEP) was designed to assess the functioning of children whose communication deficits may impair their ability to understand what is being asked of them on a more language based standardized test.

The PEP-3 (Schopler et al. 2005), the most recent update of this measure, includes both a direct assessment of the child’s skills and behaviors as well as a caregiver questionnaire. The direct assessment scale is comprised of six developmental subtests and four maladaptive scales. Developmental items range from 7 to 81 months. In general, the test is best utilized with children whose cognitive ability is younger than 6 years of age. The six developmental subtests include cognitive verbal/preverbal, expressive language, receptive language, fine motor, gross motor, and visual motor imitation. Each item is scored as a 2, 1, or 0 with 2 being a passing skill that the child can do without extra demonstration or teaching; 1 is an emerging skill where the child demonstrates some ability to perform the skill or needs extra demonstration or teaching to be successful; or 0 is a failure indicating an inability to complete any aspect of the task. These scores are totaled to yield developmental ages and percentile ranks for each area.

The Maladaptive Behavior subtests include items related to Affective Expression; Social Reciprocity, Characteristics Motor Behaviors, and Characteristic Verbal Behaviors. Lower scores represent atypical or autistic behaviors.

The Caregiver Report provides information about the parents’ perceptions of their child’s current developmental level, diagnostic categories, problem behavior, personal self-care, and adaptive behavior. Parent estimates of current child functioning in communication, motor, social, self help, thinking, and overall skills are generally accurate and broadly sensitive to developmental difficulties (Glascoe and Sandler 1995). They are also an excellent gauge of likely parent reactions to the feedback from the assessment.

Overall, analysis of reliability and validity indicate that the PEP-3 demonstrates sound psychometric properties (Schopler et al. 2005). It was developed using data collected during 2002 through 2003 in a normative sample comprised of 407 children and adolescents with ASDs and 148 children with typical development from across the United States. Both groups were similar to the general U.S. population as measured by 2001 Census data on the characteristics of race, family income, and parent educational attainment. The gender of the typically developing sample was also similar to the general population, while the gender of the sample with ASD (4:1 males to females) was similar to reported prevalence rates for autism. Coefficient alphas were calculated for all subtests and composites from the sample of individuals with ASDs at 11 age intervals (ages 2 through 12 years); average coefficients indicated high reliability and for the Developmental subtests ranged from .92 to .97, for the Maladaptive Behavior subtests ranged from .90 to .93, for the Caregiver Report subtests ranged from .84 to .90, and for the Composites ranged from .97 to .99. Test-retest reliability was assessed over a period of two weeks in a subsample of 33 children with ASDs. Raw scores were used to calculate correlation coefficients for each subtest and all indicate high reliability: Developmental subtest correlation coefficients ranged from .97 to .99, Maladaptive Behavior subtest correlation coefficients ranged from .94 to .98, and Caregiver Report subtest correlation coefficients ranged from .98 to .99.

Validity was evaluated in a series of studies correlating scores from the PEP-3 with scores from other developmental and behavioral assessments used to measure similar constructs, including the Vineland Adaptive Behavior Scales, the Childhood Autism Rating Scales, and the Autism Behavior Checklist–Second Edition. Overall, the vast majority of correlations were large (.50 and above) and in the expected direction, thus supporting the validity of the PEP-3 as a measure of development and autism characteristics (Schopler et al. 2005).

The PEP-3 can be used to identify a starting point for designing both teaching goals and Structured Teaching intervention strategies for a preschool child with autism. For developing teaching goals for home or a school IEP, the emerging skills in each development area combined with the information about parents’ greatest area of concerns typically provides an ideal starting point. The observations of the child’s strengths, and responses to the different teaching strategies utilized within the test administration, give valuable insights into the child’s learning style and where to start in developing the visual strategies discussed later in this chapter.

TEACCH Transition Assessment Profile–Second Edition (TTAP; Mesibov et al. 2007) is a criterion referenced assessment tool developed to assist in the assessment of skills and development of goals for older children and adolescents as they transition to adulthood. It is also useful for assessing and developing goals for many adults on the autism spectrum. Originally developed as the Adolescent and Adult Psychoeducational Profile (AAPEP; Mesibov et al. 1988), this second edition has been expanded to include more high functioning skills in recognition of the increasing incidence of high functioning autism diagnoses. The interrater reliability for the total score of the original APPEP was .865, and the validity of the AAPEP was established by comparing the recommendations generated by the AAPEP with those already in the client’s IEPs or IHPs. Ratings by independent, blind observers rated the recommendations based on the AAPEP as superior to those on the current IEP (Van Bourgondien and Mesibov 1989). The reliability and validity studies for the new edition, TTAP, are currently in progress. Also added to the TTAP is an informal community-based assessment to assist in the transition to adult life by evaluating the individual in a variety of vocational and living situations. The Individuals with Disabilities Education Act (IDEA) of 1997 and the reauthorization of IDEA in 2004 require that an evaluation be made and a transition plan be put into place by age 16 years at the latest.

The formal assessment aspect of the TTAP assesses six functional areas across three different contexts. The six areas assessed are vocational skills, vocational behaviors, independent functioning, leisure skills, functional communication, and interpersonal behaviors. The Direct Observation Scale provides a skill based observation and evaluation of the client by the examiner. The Home scale and the School/Work scale each complement the information gathered in the direct assessment with information from the caregiver and from either the teacher or a work supervisor. The information from these interview scales provide valuable information about a larger range of strengths and weaknesses, the generalization of skills across different contexts, and the individual’s ability to flexibly use his/her skills.

The scoring system is the same as used in the PEP-3 with a pass, emerge, or fail. In addition to the scores in each functional area across the three contexts, the TTAP formal assessment section also includes a Structure Checklist that helps to identify the environmental accommodations the individual needs to be most successful. The TTAP directly assesses the individual’s ability to benefit from the different types of schedules, work systems, and visual instructions described later in this chapter.

An added feature of the TTAP is its informal assessment components. Best practices indicate that effective transitions are facilitated by a combination of both formal and informal assessment tools (Mesibov et al. 2007). The Cumulative Record of Skills (CRS) and additional TTAP forms provide information on a greater variety of skill sets that can be assessed, taught, and re-evaluated within the job site. With its comprehensive list of skills, it goes beyond an assessment tool to become both a curriculum of skills needed in community environments and a potential record/resume of skills acquired during multiple community interventions.


The assessment process

Formal assessment is an ideal place to start working with any child, student, or adult. This formal assessment provides us with a useful developmental perspective and helps identify the general teaching goals not only in the areas of greatest concern—communication and socialization—but also in all areas of cognitive, academic, and adaptive development. However, often the goals from the standardized or formal assessment are very broad or vague, e.g. improve individual’s reading comprehension skills. The next step in the process is to take the general goal and to assess that skill area more informally and more in-depth in the actual setting the teaching will occur. For example, for the reading comprehension goal, one might assess the individual’s ability to comprehend nouns versus verbs versus adjectives. By looking more in-depth at the original goal and trying out different ways of increasing the student understanding, one develops more refined goals and teaching strategies that can translate into immediate teaching objectives in the classroom, home, or vocational setting.

The next step in this process is to implement the teaching activity and to observe the success of this effort. Every teaching opportunity is also a chance to reassess not just the individual’s skill, but also the learning style and what teaching strategy works best. Restructuring our teaching activities is a fundamental aspect of the Structured Teaching philosophy. By carefully observing the child or adult’s response to our teaching efforts, we learn what works best for him or her. Ultimately, through this dynamic process of teaching and restructuring, the individual achieves mastery of the concept and independence in performing the skill (see Fig. 5.1).



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Fig. 5.1
The assessment and teaching process: from formal assessment to independence



Structured Teaching


TEACCH’s predominant intervention methodology is Structured Teaching, a set of teaching principles and intervention strategies based on our understanding of the culture of autism as well as the unique needs, skills, interests, and preferences of each individual with ASD (Mesibov et al. 2005). Given the neurological basis of the culture of autism, Structured Teaching emphasizes both teaching new skills as well as developing compensatory strategies and environmental supports, much as a cognitive remediation program seeks to improve and/or compensate for cognitive deficits arising from brain dysfunction (Ozonoff et al. 2005b). Structured Teaching emphasizes the use of visual and organizational supports and can be applied in flexible ways in a variety of settings for individuals of all ages and all abilities levels. Structured Teaching can be used to develop or improve skills in communication, social interaction, academic achievement, daily living and self-help, leisure, and vocation. It can also be used to help prevent behavior problems (Van Bourgondien et al. 2003) and adapt interventions focusing on mental health issues (DeRamus and Naftel 2008). Although Structured Teaching draws heavily from behavioral and cognitive behavioral principles, it is most closely aligned with cognitive–social learning theory in that it emphasizes the importance of recognizing the client’s thoughts, expectations, and understanding when designing interventions to change behavior and teach new skills (Mesibov et al. 2005). The effectiveness of visual systems as an intervention technique has been documented in numerous studies with children and adults in a variety of settings (Bryan and Gast 2000; Dettmer et al. 2000; Francke and Geist 2003; Hume and Odom 2007; Mesibov 1997; Mesibov et al. 2002; Mesibov and Shea 2010; Mesibov et al. 2005; Panerai et al. 1998; Panerai et al. 2002; Panerai et al. 2009; Persson 2000; Probst et al. 2010; Probst and Leppert 2008; Quill 1997; Short 1984; Van Bourgondien et al. 2003; Vaughn and Horner 1995).

The primary goals of Structured Teaching are to (1) create an organized and predictable environment that enables individuals with ASD to move beyond fragmented details and begin to understanding meaningful connections in the world around them, and (2) teach skills that are functional and help promote personal independence at whatever level the individual is capable of (Mesibov et al. 2005). The basic elements of Structured Teaching include (1) organization of the environment and physical space, (2) visual schedules, (3) structured work and activity systems, and (4) visually structured activities. Each is discussed in the following section.


Physical Structure


Physical structure refers to the way the environment and physical space is organized to give it clearer context and meaning and to accommodate the specific needs of the individual with ASD. Physical structure can be applied in many environments, including homes, classrooms, leisure settings, and work sites. In designing physical structure, one adds clear visual and physical cues and boundaries to visually answer the question “What happens here?” as well as organizing the environment to minimize distractions and irrelevant information. Clear physical boundaries can be achieved by rearranging furniture to enclose larger spaces, adding visual cues such as wide strips of tape or carpet mats to clearly outline the area where the activity will be happening, or doing something as simple as closing a door. Visual and physical cues give further information about the function of the space, such as using pictures or signs to label the area, having the appropriate activity materials be out and visible, and removing all irrelevant information and materials from the activity area. Thoughtful physical structure can also reduce visual and auditory distractions in ways such as creating work spaces away from doors and windows, TVs, and areas where other students, family members, or coworkers congregate. Further, it is important to consider the traffic pattern of the overall layout to minimize the need for others to intrude unnecessarily in the area (e.g., not placing a work area near a bathroom frequently used by others) and minimize transitions for the individual (e.g., having all materials necessary for the work in the work area, having direct paths from one work area to another).


Visual Schedule


A visual schedule is a visual cue or set of cues that indicate to the individual with ASD what activities will occur and in what sequence. Visual schedules help keep the individuals organized and focused, and allow them to predict what they will be doing next and understand when certain activities will happen in the future, thus reducing stress and anxiety about the unknown. A visual schedule provides a concrete, visual way for understanding what is expected and what is happening, rather than the individual having to rely on verbal communications that are difficult to process, or having to rely on his or her own memory or desires for a specific routine. Teaching a client to use a visual schedule to guide his or her activities, rather than teaching him or her to always follow a specific routine, helps the client be more flexible about necessary changes in routine. Schedules also promote independence, because the individuals are guided through their daily routine by the schedule, as opposed to having to rely on another person to prompt them through every activity change (Krantz et al. 1993; MacDuff et al. 1993).

Visual schedules take many forms, but overall their purpose is to help the client understand “Where am I supposed to be now?” and “When will I get to _______?” Within the schedule, there are a variety of ways to individualize the schedule including the type of visual cue, the way it is organized, the length of the schedule, how the student manipulates or interacts with the schedule.


Visual cue

The type of visual cue chosen for the schedule depends on the needs and abilities of each individual client. Because the purpose of the schedule is to provide meaning and structure to the day, and not to teach language or reading, it is important that the specific cue chosen be clear and meaningful. Possible visual cues, in order from most concrete to most abstract, include objects, photographs, drawings or icons, and written words. The client should be able to understand and use the schedule independently, so it is counterproductive to choose a visual cue that is too abstract. For young children and individuals with an intellectual disability, using objects that represent the upcoming activity is often the clearest and most meaningful visual cue. For older children, or individuals with a milder intellectual disability, using photographs or drawing/icons that the individual clearly understands to represent activities may be most appropriate. Once a child or individual is reading, often written words are a good choice for a schedule, because they are meaningful and easy for everyone in the environment to create.


Organization and length

Typically, the visual cues are organized in either a left to right or top to bottom sequence, because those are the ways individuals are taught to read and scan for information in our Western culture. In other cultures, a right to left or bottom to top sequence may be more intuitive. The length of the schedule also depends on the needs and abilities of the individual. Young children or older individuals with significant intellectual disability may need to see only one or two objects or pictures at a time, helping them to understand a simple sequence of “First ______, then ______.” Older children and individuals with mild intellectual disability may be best served by having the day’s schedule broken down into parts, and seeing only a few hours or half a day’s worth of activities at a time. For older and higher functioning individuals, having the entire day’s schedule presented at once may be the most useful.

Although age of the individual and overall intellectual ability can provide a useful starting point for deciding on the specific visual cue and length of the schedule, each client’s array of strengths and weaknesses need to be taken into account. Some individuals with significant intellectual impairment can learn to read and comprehend single words quite well, and thus a schedule with words may be most appropriate. Some individuals with intellectual impairment become anxious when they do not have enough information about their day, and thus a full-day schedule may be the most appropriate to use with them. Conversely, some very intelligent adults with ASD become easily overwhelmed and distracted by having too much information at once, and thus would do better with a half-day schedule.


Manipulation

No matter the type of schedule used, individuals should actively manipulate the schedule, such as by carrying the object or picture to the next activity or crossing or checking off the activity when finished. Individuals with ASD are less likely to reference and be engaged with a schedule when they are not able to manipulate and interact with it in some way. It also is more difficult for them to track what activities they have completed and what activities are upcoming if they are not able to remove or cross off schedule cues after completion.

Finally, as the individual with ASD ages and develops, it is important to remember that the long term goal is not to fade or remove the schedule from his or her environment. The same way students and adults without disabilities need schedules and calendars to effectively organize their time and activities, the individual with ASD will benefit from using some sort of schedule support throughout his or her life. However, it is very appropriate to change the cue, length, content, and organization of the schedule to reflect developmental changes in the individual’s needs and skills. Thus, a client who uses a first–then schedule as a young child may progress to a half-day picture schedule as a kindergartener, and then a full-day written schedule by the time he or she is in middle school. As the child ages, the goal is to make the schedule more portable and more blended with the natural environment. Although written lists and calendars work well for many clients, more options are becoming available through widely available technologies. For example, smartphones, tablet computers, and other PDA devices provide a relatively affordable, user-friendly, and age-appropriate platform in which to incorporate schedules and other forms of visual supports for older children, adolescents, and adults. Advantages of these devices include their portability, their flexibility (e.g., schedules can be presented using words, photographs, or pictures), and their popularity, which allows the individual to use them in a more discrete fashion than a paper schedule. Research is needed to investigate the utility of electronic schedules. The preliminary research, however, indicated that adolescents who used visual checklists on handheld computers to self-monitor behaviors and feelings were rated higher than the wait list controls by adult supervisors on dimensions of initiative and self-regulation (Levine et al. 2010).


Work and Activity Systems


Physical structure and visual schedules communicate to the individual with ASD the day’s activities and where to go for each activity. Once the individual is in the specified area, the work system, sometimes called the activity system, provides information about what is to be done. The goal of the work system is to give the individual a systematic strategy to approach the work or activity that needs to be completed. This learned strategy helps the person understand what to do and stay focused, while also building independence and enabling the individual to generalize skills into other environments (Hume and Odom 2007). The systems are designed to answer visually the four questions: (1) What is the task or activity?, (2) How much work and/or how many activities are there, or how long will the activity last?, (3) How will I know that progress is being made and when I am finished with the work or activity, and (4) What happens next after the work or activity is finished?

Similar to visual schedules, work systems are individualized to the client’s developmental level and strengths and weaknesses. Some individuals use a Left to Right work system, in which materials for work and activities are presented in an organized fashion on the left of where the individual is seated. Activities are taken and worked on one at a time, and then placed in a finished area as they are each completed. The four questions are answered by visually observing the work to be done and then the work gradually disappearing into the finished area or basket. The last item in the line of work activities is a cue which indicates what the individual will do next. For a higher functioning individual, the work system might be a written list of tasks. The list of tasks tells the individual what and how much work to do. As the individual completes each activity, he or she would cross it off the list, thus showing the progress being made. When all activities were crossed off, the individual would know that the work was finished and that it was time to do whatever was written next on the system.

The work system in many ways addresses the issues and strengths presented by the culture of autism—described earlier as the shared characteristics and predictable patterns of thinking and behavior of individuals with ASD. First, no matter the ability level of the individual, the work system is presented visually. The system clarifies what aspects of the environment the individual needs to be attending to, and provides an organizational structure to complete the activities that the individual may not be able to generate independently or internally. The system adds predictability and a clear end or finished point, which reduces anxiety and can give the individual with ASD a naturally motivating feeling of satisfaction and closure at completion. Similar to schedules, the work system helps develop a multitude of skills. Once the work system is learned, it can be transferred to a variety of settings and contain a variety of tasks, including academic work, self care and daily living activities, and vocational activities. Ultimately, the individual can have a variety of work systems located throughout their classroom, home or job setting. The system also provides an ideal way to organize leisure activities. While leisure time can be rewarding and relaxing to individuals with typical development, open-ended, unstructured time is often confusing and anxiety-provoking for individuals with ASD. Using the work system to structure leisure activities has been shown to increase independence on task behavior and the variety of play materials utilized in play situations (Hume and Odom 2007). Also like the schedule, the work system should not be faded over time. Rather, as the individual develops, the work system—and the activities within it—should change to reflect the individual’s current developmental level and needs.


Visually Structured Activities


Finally, it is important to consider the visual structure of the activities within the work system. Even with an appropriate schedule and work system, a person with an ASD will struggle with the tasks if they are not appropriately visually structured.


Visual instructions

First, providing visual instructions will enable the individual to know where to begin the task and what sequence of steps to follow. Visual instructions enable the individual to know exactly what to do, but also allow for the flexibility of changing the instructions when a new approach may be necessary. Again, the type of visual instructions depends on the individual client. Younger or more intellectually impaired individuals may do best with instructions in the form of matching jigs, product samples, or photo or picture series. For older or less cognitively impaired individuals, written directions may be appropriate.

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Jun 3, 2017 | Posted by in NEUROLOGY | Comments Off on TEACCH: An Intervention Approach for Children and Adults with Autism Spectrum Disorders and their Families

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