Research and Evidence-Based Practice

9

Research and Evidence-Based Practice

Katrina Bannigan

CHAPTER CONTENTS

INTRODUCTION

This chapter focuses on why research (see Glossary) is important to occupational therapists and why it is essential to the delivery of high-quality services. However, research alone is not sufficient to improve the quality of services (Grimshaw and Thomson 1998). Practitioners also need the skills to integrate research findings into practice. This chapter describes these skills.

Ultimately, the purpose of research is to advance knowledge (Wilson and Butterworth 2000). In the context of health and social care, research can be used to gain new knowledge about the most effective interventions to use in practice. ‘Research tells us what we should be doing. [Whereas] Clinical audit tells us whether we are doing what we should be doing and how well we are doing it’ (Health Quality Improvement Partnership 2009). Clinical audit is an important quality enhancement process but it is not research and will not be discussed further in this chapter (see Ch. 7 for more on clinical audit). For a detailed analysis of the differences between audit, service evaluation and research, see the work of the NRES Ethics Consultation E-Group (2007). Although research and evidence-based practice are generic skills, used by all practitioners in health and social care settings, this chapter focuses on the issues related to research and evidence-based practice in the field of mental health practice specifically.

The contested nature of evidence-based practice is discussed, because it has been a contentious topic within occupational therapy. The developments in, and challenges for, research and evidence-based practice in occupational therapy and mental health, are therefore considered in relation to this debate. An important development since the last edition of this book is the emphasis on service user and carer involvement in research, so this is also explored in this chapter.

WHY IS RESEARCH IMPORTANT?

Occupational therapists strive to do what is best for their service users but how do practitioners know the best, or most effective, intervention to use? Occupational therapists use different information sources, including anecdotal evidence and research findings to shape their thinking. For example, an occupational therapist may believe that using activities in group settings is an effective way of improving interpersonal skills because they have observed this in their practice, or they may have heard from other leading occupational therapists that group work helps to improve interpersonal skills (e.g. Breines 1995). However, if they were asked for evidence to support their assertion that the use of activities in group work was effective and they used anecdotal information to do so, their assertion would be challenged. The following arguments might be made, for example:

 The occupational therapist was only seeing what they wanted to see

 Their service users would say that they thought group work was helpful. They might feel obliged to say so, not wanting to upset their therapist

 Of course, they think the interventions used by leading occupational therapists are effective but surely leading occupational therapists are biased towards their own profession

 How can anyone be sure it was the activity group that was effective and not another intervention occurring around the same time?

These challenges are legitimate because it is acknowledged that human beings are influenced by their assumptions, which biases the way they see the world (Patton 2002). One cannot be certain that an observation is accurate and not merely a reflection of personal bias (Patton 2002). This means that while clinical experience can be valuable in shaping practice, it has its limitations in decision-making about clinical effectiveness:

Because patients so often get better or worse on their own, no matter what we do, clinical experience is a poor judge of what does and does not work

(Doust and Del Mar 2004, p. 474).

Furthermore, it makes no difference whether the observer is a renowned occupational therapist or a professional colleague; they are likely to carry around the same bias towards seeing the positive relationship between occupation and health. In order to mitigate bias and directly access the service user perspective, practitioners might employ patient satisfaction surveys. However, there are several reasons why these methods are also potentially problematic:

 Respondents often comment on staff (such as individuals’ politeness and courtesy), rather than on services

 Respondents often do not want to say anything negative

 The data gathered are dependent on the way the survey is designed and if it is poorly designed, the data collected may be flawed

 Such surveys ‘require value judgements from patients about their care based on partial knowledge of their condition and maybe even less about how services are run’ (Modernization Agency 2003, p. 1).

It is because of these types of reliability and validity problems that the results of patient satisfaction surveys often lack credibility.

Questions of Effectiveness

If a service user is receiving a number of interventions – perhaps from a range of different professionals at the same time – how can an occupational therapist be certain that their own intervention contributed to the improvement in interpersonal skills, for example? Or, put another way, how can it be established that it was not another intervention that had produced the effect?

Questions of effectiveness are concerned with researching cause and effect; such as asking whether activity-based group work (cause) led to an increase in interpersonal skills (effect). Randomized controlled trials have developed over time to enable researchers to answer questions about cause and effect and these are now generally used in health and social care settings to evaluate the effectiveness of interventions. Examples of randomized controlled trials conducted in occupational therapy and mental health, include Graff et al. (2006, 2007); Edgelow and Krupa (2011); Lambert et al. (2009).

There are three key features of a randomized controlled trial: a control group, random allocation and blinding. These techniques have been developed to ensure that, if the study has been well-conducted, its results reflect the effectiveness of the intervention and not another confounding factor, the bias of the observer or selection bias, or the play of chance.

The randomized controlled trial is not the only research method that has developed and evolved over time. Methods of ensuing rigour in qualitative research (understood as trustworthiness) have undergone a similar evolution. Qualitative research seeks to develop in-depth understanding of phenomena such as lived experience (phenomenology), or a person’s story or narrative about their own recovery journey, for example. Techniques have been developed in qualitative research, to maximize credibility, transferability, dependability and confirmability, to ensure that the findings of a qualitative study reflect the data collected and not the researcher’s bias (Polit and Hungler 1995).

Reflecting on the example of occupational therapists’ belief in the efficacy of activity-based group work, an overview of published research can be illuminating. A systematic review of activity-based groupwork aimed at helping people with severe and enduring mental health problems in community settings, improve their functional ability and/or reduce their mental health symptoms identified 136 papers (Bullock and Bannigan 2011). Of these, only three papers were relevant and met the inclusion criteria (see Bullock and Bannigan 2011 for more details on the method). Unfortunately, heterogeneity and flaws in quality in the three studies meant it was not possible to make specific inferences for practice from the studies. This means that, at the time this systematic review was published, occupational therapists only had anecdotal information to support their practice in relation to activity-based group work. Although it may have been supported by considerable theory (e.g. Cole 2005), there was no rigorous research to support the assertions that underpin this practice. This is important because activity-based group work is widely used by occupational therapists in mental health settings. The difference between evidence and information, in the context of evidence-based practice, is summarized in Table 9-1.

THE DIFFERENCE BETWEEN RESEARCH AND EVERYDAY LIFE

The discussion in this chapter so far highlights the difference between knowledge generated by research and that derived from everyday life (Abbott and Sapsford 1992). In everyday life, we are free to observe and draw conclusions at will but we know that we often ‘see what we want to see’. Research is more systematic than everyday life, drawing on a body of technical expertise or research methodology to ensure conclusions flow logically and cogently from the data and are open to public scrutiny. In this sense, research enables health and social care professionals to be accountable (Kumar 2011). Having a clear audit trail enables a transparency in decision-making that is not present in the use of customary assumption, intuition or tacit knowledge.

As well as having a sound methodological basis and being systematic in its approach, research also requires a certain attitude; a vigilance regarding gaps in arguments and/or weaknesses in the procedures used. Researchers and consumers of research always need to look for possible alternative explanations for the results or findings of a study; asking, for example, if there are any errors in the method. Researchers need to ask themselves ‘Are there any other competing explanations for what they have observed?’ When reading research occupational therapists need to ask, ‘Is there anything else that could explain what the researchers found?’ A questioning approach not only requires imagination, therefore, but a willingness to be open to other possibilities explaining the results or findings of a study. This means occupational therapists need to think carefully about the research findings they read and be open to the possibility that research may not demonstrate positive outcomes from occupational therapy.

In short, research methods allow us to collect data to generate new knowledge using methods and procedures which ensure the information is valid or trustworthy, and not biased by the researcher. This provides occupational therapists with a way of learning from their experiences which allows them to not be misled by their intuition or biased observations. This was partly the impetus for evidence-based practice. Practitioners in health and social care could no longer rely solely on their intuition or anecdote as sources of knowledge (Doust and Del Mar 2004). They had to start using rigorous, well-conducted research to underpin their clinical reasoning. Much of the new knowledge occupational therapists need in order to work competently post-qualification is gained through research. This is why occupational therapists need to be ‘research aware’ (see also Ch. 7, where continuing professional development is discussed in more detail in relation to professional accountability).

THEORY AND RESEARCH

Some research is known as ‘blue skies research’. This is exploratory in nature with no certainty about how the phenomena being studied may be related, or what the outcome or usefulness of the research will be. While blue skies research has value in health services research, health services research is generally conducted to shape practice and should be relevant and important to service users and practitioners.

Research questions are usually deemed to be important if they have cost implications, and/or involve high numbers of service users, and/or are concerned with increased morbidity and risk of mortality. In some instances, the priorities of service users are used to shape the questions that researchers are funded to research (see Keating et al. 2006; Wright et al. 2007; and http://www.twocanassociates.co.uk/routemap/setting- research-priorities.php). Although practice shapes research questions, the design and approach to data collection is rooted in theory (except in the case of grounded theory, which is used to generate theory).

Theory is needed to operationalize a research study. It is used to define the concepts within the study, understand how they relate to each other, and to understand how best to address the research question. Box 9-1 shows how such operationalization fits into the research process. An example of how operationalization allows for the exploration of underpinning theory is provided in the systematic review of activity-based group work described earlier. In this review, Bullock and Bannigan (2011, p. 257) state:

BOX 9-1

THE RESEARCH PROCESS

IDENTIFY A RESEARCH TOPIC

This should emerge from practice and be important. The topic is used to shape the key terms for the search strategy used to search the literature.

REVIEW LITERATURE

To identify (a) if there is a gap in the knowledge base and (b) how the topic has been researched in the past.

OPERATIONALIZE KEY TERMS

To develop working definitions of the variables (based on the reviewed literature) and an understanding of how terms relate to each other.

FORMULATE RESEARCH QUESTION

This can be expressed as a question, an aim, an issue or a hypothesis.

DESIGN THE STUDY

This involves choosing a research design or approach suitable for answering the question.

FINALIZE RESEARCH PROPOSAL (OR PROTOCOL)

This becomes the blueprint for the study.

SUBMIT ETHICS APPLICATION (IF NEEDED)

If the study involves people a favourable ethical opinion (following ethical review) is required before the study can begin.

COLLECT DATA

Recruiting people to the study and collecting data. No changes must be made to the agreed proposal (protocol) without securing permission for the changes from the ethics committee that gave the favourable opinion.

DATA ANALYSIS

The data collected are analysed using techniques consistent with the research design in order to generate findings or results.

INTERPRET FINDINGS OR RESULTS

Understanding what the findings or results mean in relation to the research question.

WRITE REPORT

For a student, this might mean submitting your dissertation. For someone who has been funded it might mean submitting a report using a template developed by the funding body. It may be a research paper for a journal.

DISSEMINATE FINDINGS

As well as the research report the researcher needs to consider wider dissemination of their work, e.g. conference presentations or information leaflets, so that the people who need to hear about the study’s findings or results are informed.

This group work is often activity based (Lloyd, King, & Bassett, 2002), with activity defined as “a series of linked episodes of task performance by an individual which takes place on a specific occasion during a finite period for a particular reason” (Creek, 2003a, p. 49). According to Finlay (2004), “activity groups aim to develop skills and/or encourage social interaction. The term is used in contrast to ‘support group’ which emphasizes communication and psychotherapy elements” (p. xiiii)

In this statement, the researchers are clearly explaining how the concept ‘activity’ is understood within their study and how they understand activity is used within group work. Both definitions are supported by references to the literature, drawing on the work of well-known theorists whose work is widely accepted within the profession. Bullock and Bannigan (2011) do not suggest that the definitions are contentious or that there are a number of different ways of defining the terms, which suggests these are fairly standard definitions.

Another example of how theory informs research is Creek’s (2003a) exposition on occupational therapy as a complex intervention. The Medical Research Council (2000) described a number of steps involved in evaluating a complex intervention. The first step is ‘to explore relevant theory to ensure the best choice of intervention’ (Medical Research Council 2000, p. 3) and the second is to ‘identify the components of the intervention and the underlying mechanisms by which they will influence outcomes’ (p. 3). Creek’s (2003a) definition of occupational therapy as a complex intervention provides researchers with a coherently structured description of the components of occupational therapy and how they relate to each other, so that researchers can evaluate the intervention consistently in different studies.

SERVICE USER AND CARER INVOLVEMENT IN RESEARCH

The inclusion of service user commentaries in the fourth edition of this book is indicative of the growth of the service user movement generally and the mental health service user movement in particular. The service user commentary on the research chapter in the previous edition (Ilott 2008) highlighted the following issues:

 The use of language associated with research and evidence-based practice tends to exclude service users

 The research questions which service users generate are rarely the subject of research investigations

 Service users want their experiences to be valued and harnessed within research projects

 Service users want to be involved in research and the ways in which service users can contribute varies enormously from designing studies to leading research programmes

 Service user involvement contributes to better social inclusion and empowerment for service users and carers

 Help for services users and carers may be needed in terms of practical support during the research process

 There is a challenge for occupational therapy, as a research-emergent profession, to learn from others in order to break traditional boundaries of research (such as using new approaches to conducting research) without relinquishing quality standards.

These issues provide a useful structure to explore service user and carer involvement in research.

The Practicalities of Involving Service Users and Carers in Research

There is an expectation that service users and carers will be involved in all kinds of research, including mental health research. The mental health research network in the UK has, as one of its priorities, to give people with experience of mental health problems and their families the opportunity to get involved in studies (Mental Health Research Network 2010).

This is not a purely altruistic gesture because involving service users and carers in research, if done well, improves the quality of research (RCN 2007) (see Box 9-2). The qualification ‘if done well’ is important here because there is a danger of tokenism; whereby the appearance of service user inclusion is created but without an authentic service user voice being heard. Avoiding tokenism requires researchers not only to think, but also to behave, differently. This may include, for example:

BOX 9-2

AN EXAMPLE OF SERVICE USER INVOLVEMENT IN MENTAL HEALTH RESEARCH

THE EAGER PROJECT

The Evaluation of the impAct of the implementation of Government policy on occupational therapy: using assertive outreach as an ExemplaR (EAGER) Project

In this evaluation of the impact of UK government policy – the National Service Framework for Mental Health (DoH 1999) – on occupational therapy was explored. Assertive outreach was used as an exemplar because, at that time, it was the only policy area in the UK that specified that occupational therapists should be included in teams or that another member of the team needed to be educated to develop the relevant skills. A participatory model of user involvement was adopted to develop an approach to research that was congruent with client-centred practice (Sumsion 2000). A team of service user researchers were recruited to work with the project team on data collection, data analysis, report writing and dissemination. Service users designed the interview schedules, conducted interviews, analysed data and participated in dissemination. As well as gathering qualitative data, a cost analysis and a notes audit using an intervention schedule for occupational therapy were also undertaken.

LESSONS LEARNT

 Involving service users improved the quality of the research. For example, service users brought a different perspective to the interpretation of findings. They found similar issues to the occupational therapist researchers but drew out nuances missed by the occupational therapists. For example, teams without occupational therapists offered a narrow range of group interventions, incongruent with a recovery-orientated service (see Slade 2009), rather than individualized activity provided by occupational therapists. This suggested occupational therapists make a positive contribution to the recovery of people with severe mental health problems.

 Research needs to be planned and conducted over a longer period (Consumers in NHS research support unit 2001; Involve 2003; Steel 2004) because there may be times when service user researchers’ mental health problems impact on their ability to work on the study. In this study only one person was continuously involved in the whole process. In keeping with each individuals’ recovery journeys people only contributed to the study when they could.

 Incorporating an education programme was beneficial. It ran alongside the study to ensure a lack of research experience did not disadvantage anyone involved in the study.

 Data analysis required prior research knowledge or experience beyond the education programme offered during the study.

 The administration of service users’ remuneration was managed through the NHS Trust rather than the university because the processes to facilitate this were already in place.

 It was advantageous to link with a service user consultancy because of their expertise and strength in depth; they were well networked.

 It was important to adopt a flexible approach, for example, data collection was organized over a longer period of time.

ACKNOWLEDGEMENT

The EAGER project was funded as one of the College of Occupational Therapists’ urgent research priorities funded projects in 2006. This scheme was a competitive funding round that sought to develop the occupational therapy profession’s research capacity. Funding provided the opportunity to develop Dr Katrina Bannigan’s research capacity as a principal investigator and Simon Hughes’s research skills because his PhD studies were embedded within the project.

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Oct 17, 2016 | Posted by in PSYCHIATRY | Comments Off on Research and Evidence-Based Practice

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